Ilham has a rare genetic disease-Pitt Hopkins syndrome. In Russia, there are only about 300 children with this disease. In Astrakhan, Ilham is the first examined child with this syndrome. Up to 7 months, Ilham developed like an ordinary child. Later, the mother began to notice that the child does not turn over on its own. After long consultations with doctors, a diagnosis was made - perenatal CNS lesion. By the age of 1 and 9 months, Ilham was diagnosed with cerebral palsy, but neurologists for a long time doubted the diagnosis of dianosis and sent the boy's parents to a geneticist. After passing numerous tests, this rare syndrome was revealed.
Ilham is diagnosed with a developmental delay. At 3 years and 8 months old, the boy does not walk, does not crawl, does not serve himself. There are intellectual disabilities. Ilham does not speak. Every 2-3 months, the boy goes through rehabilitation programs for massage and physical therapy. Regularly engaged in ABA therapy.
Ilham will have to pass the next habilitation course
