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A supply of skincare products for Eva has been purchased and delivered.

Treatment
Medicines

Deti-babochki

Charitable foundation · Moscow

collected

of RUB 319,246

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Eva lives with ichthyosis — a genetic disorder in which the skin cannot retain moisture and becomes covered in scales. Constant itching, flaking, and the risk of overheating due to the lack of sweating — this is her everyday reality. The state does not provide patients with ichthyosis with care products: they are not listed as medicines, which means the entire burden falls on the family.

Three times a day — a bath with moisturizing oil, skin treatment, “Topikrem”. Twenty jars per month. Without this regimen, the skin cracks, the temperature rises, and an ordinary summer day turns into a threat.

We raised funds, purchased the necessary supply of lotion and bath oil, and gave everything to Eva. Now she has what makes every day bearable — without pain and the fear of overheating.

The “Butterfly Children” Foundation thanks everyone who didn’t walk by. You didn’t just help buy the cream — you gave Eva the opportunity to live without constant pain. Thank you for choosing to help. ❤️

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About the campaign

Eva has ichthyosis. To protect her skin, she needs a special product

Eva, her dad and brother live in Simferopol. Eva was born in a cocoon, a thick film over her skin. She was born prematurely and this, according to the doctors, saved her. If the birth had been on time, the film would have turned into an impenetrable shell, and the girl would not have survived.

Such people are called fish. They are born with scaly skin, which is constantly itching and peeling. There is no cure for ichthyosis, the disease is genetic. Due to a breakdown in the genes, the epidermis is disrupted, the skin is unable to retain moisture. Patients with ichthyosis do not receive any therapy from the state, because moisturizers are not considered medicinal products.

Eva needs to take a bath with moisturizing oil three times a day, treat her skin and apply a special milk, Topicrem. He's the only one helping her. It is necessary to constantly monitor well-being, patients with ichthyosis do not sweat, they can overheat, especially in hot weather. And then the temperature will rise instantly. Eva needs 20 jars per month.

Let's help together!