Stas came under the care of the foundation in 2018. He is a social orphan—a child living in an orphanage whose parents exist only on paper. The illness did not affect the boy’s intellect but distorted his body, “freezing” his arms and legs in unnatural positions.
Soon, Stas had difficulty turning his head, and it became hard for him to speak and swallow. Through whole genome sequencing analysis, a rare genetic disease was diagnosed, occurring in only one person per 200,000. Besides Stas, there is only one other patient with this condition in Moscow.
In September 2021, Stas was prescribed the correct treatment, and he immediately started to improve. First, he began to crawl, then mobility returned to his hands, and soon Stas was able to sit, control his wheelchair, and learn! Thanks to the help of caring people, the boy was able to regain joy in his life.
Stas’s illness requires constant rehabilitation—he will not be able to manage without assistance going forward. Please help us pay for a nanny who will support Stas throughout all three weeks of his treatment.
