Kirill has a rare and severe type of ichthyosis, a genetic disease in which skin keratinization is disrupted. In Cyril's case, the disease is manifested by the formation of crusts on the body, under which purulent abscesses form.
"Kiryusha was born a completely normal child, only his arms and legs had thickened skin," the boy's mother recalls. – And at the age of 2 weeks, hell began: terrible ulcers in the groin and armpits. He was admitted to the Morozov hospital, treated, but after 3 weeks everything happened again. And then again. And so on - many times in a row."
In Russia, Kirill could not be given an accurate diagnosis. The family sold the apartment they inherited and took the boy to Spain, where a genetic study finally determined that Kirill had KID syndrome, a disease in which ichthyosis was only one of the manifestations, and the other two were deafness (Kirill had 60% hearing in only 1 ear) and keratosis, an overgrowth of keratinized skin tissues. These crusts crack, become infected, and cause the boy a lot of suffering.
In ichthyosis, there is no treatment aimed at the disease itself. There is only care to maintain the skin in a normal state, prevention and treatment of complications, such as bacterial and fungal infections of the skin. Kirill's skin condition is deteriorating, and more and more funds are needed to maintain his skin. The boy's family is unable to bear these costs on their own.
They need our support.
Verified by Tooba
Verified by Tooba
