Varya grew up as a cheerful, active girl, developed quickly and almost never got sick. But during one routine examination, the doctor, seeing the baby, did not frown: he noted her rough facial features, a wide bridge of the nose and legs that bent inward. Examination after examination, the doctors went through the versions. And, finally, the diagnosis was announced - mucopolysaccharidosis. This is a rare disease due to a gene breakdown.
An urgent bone marrow transplant helps slow down the destruction of the body and contain the disease. Before the transplant, Varya had to undergo chemotherapy - heavy and aggressive, to completely "zero" her immunity.
After the transplant, Varya had to start from scratch. Her muscles atrophied, and every movement was difficult, she was afraid to take even a step. It was as if she was learning to live all over again. To help Varya recover, she urgently needs the drug "Yakvinus", which prevents serious complications after transplantation.
Varya is now only two and a half years old. She doesn't know what a kindergarten, a bicycle or ice cream on a walk are yet. But she already knows what a drip, a box, a tube in a vein and a machine that shaves hair are. But she has a loving family and a whole world in which she wants to grow up.
Tubers, your support is a real chance for Varya to cope with the consequences of the disease. Any amount is an opportunity for her to survive, an opportunity to grow further. A brave, cheerful, beloved girl who once lived through all this.
Друзья, осталось совсем чуть-чуть, вместе мы сила ♥️
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