10-year–old Dima is a ward of the Butterfly Children Foundation. He has a dystrophic (the most severe) form of a rare genetic skin disease, epidermolysis bullosa (EB).
With this diagnosis, the strength of the skin and mucous membranes decreases – they are injured even with minimal mechanical impact. The hands are particularly affected, as they are subjected to the greatest stress. Over time, due to constant wounds, the fingers grow together, and the basic actions - taking a cup, holding a pen, combing your hair, tying your shoelaces – become impossible.
Finger separation surgeries save butterfly patients. But such interventions involve long and difficult rehabilitation - even bandages after surgery are performed in a hospital under general anesthesia. Dima's surgery will be carried out according to a quota, but there are no quotas for the rehabilitation period.
Dima's mother died many years ago, and his father was deprived of parental rights. The boy was raised by his grandmother and aunt Nastya, who is only 11 years older than him. Nastya was doing bandages for her nephew, and grandma was doing "official" business. They lived like this for 5 years, but in 2022, grandma died, and the girl, as soon as she turned 18 a few months later, took Dima into custody.
Despite all the difficulties, Dimka is growing up to be a wonderful, charming boy, studying full-time and at school, and even playing sports. In order for him to continue living the life of an ordinary child, he needs our help.
The Butterfly Children Foundation has opened a collection to pay for surgery, bandaging, anesthesia, and hospital stay.
Какая сложная операция! А перевязки после операции - это ещё одно испытание! Димочка, пусть скорее все свершится!
Субхан Аллах почему так дорого
❤️
Дима - всё будет хорошо!