Little Sharapat has a rare congenital condition called Spina Bifida. To ensure she and the other children in the foundation's care can develop, move, and become more independent, they need regular and competent rehabilitation. However, there are no specialists close to home who understand the specifics of this condition. For these children, a visit from a Spina Bifida specialist offers a real chance for progress. The Spina Bifida Foundation employs 11 physical therapists who travel to children across Russia, where families are often left alone with their diagnosis.
During a visit, the specialist doesn't simply conduct sessions; they carefully examine the child, identify their capabilities and limitations, talk with the parents, and answer dozens of troubling questions. They select rehabilitation equipment that is truly suitable for the child and supports their development, not just from a template. They assess the apartment and help make the space more accessible and safe. They also develop games and activities that are useful and manageable, despite physical limitations.
In addition to in-person visits, a large, unnoticed, but crucial part of the work involves writing detailed recommendations for schools and kindergartens. Specialists create individual lesson plans, prepare reports, and develop medical routing. All of this is necessary to ensure that assistance is systematic and effective, not ad hoc.
Support this fundraiser, because children with Spina Bifida should not be left without support just because they live far from major cities. Every child deserves professional help, a chance to develop and lead a more independent life.
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Verified by Tooba
