A year's supply of specialized medicinal mixtures has been delivered to Patimat

Deti-babochki

Foundation Moscow

Patimat is 15 years old, she lives with a severe form of epidermolysis bullosa: due to damage to the esophagus, she cannot eat regular food, and her life depends on specialized nutrition through gastrostomy. For patients with this diagnosis, therapeutic mixtures are not just food, but medicine.: they make up for the deficiency of trace elements, provide resources for wound healing and help the body fight infections. Thanks to your support, Patimat has received the necessary nutritional support, which will give her the strength to grow, improve skin regeneration, and improve her quality of life. Thank you again for your kindness and concern!

Report

Campaign information

A patient with a rare genetic disease needs therapeutic nutrition

Patimat will turn 15 in March, although she looks much younger due to her illness. The cause is a severe form of epidermolysis bullosa, a rare genetic skin disease. People like her are called "butterflies": the strength of their skin is so low that any touch can cause injury. Only daily bandages, which perform the function of a "second skin", save. In severe cases, the disease also affects the mucous membranes. Patimat's esophagus is affected, which is why she cannot eat regular food. To prevent the girl from dying of exhaustion, doctors installed a gastrostomy tube for feeding her directly into her stomach. Now Patimat's life and physical condition are completely dependent on specialized mixtures. For "butterflies", proper nutrition is a medicine. Their bodies are constantly losing proteins and iron and spending enormous resources on wound healing. Special therapeutic mixtures work like a dressing, only from the inside: they make up for the deficiency of trace elements and provide the building material for tissue repair. We are opening a collection for an annual supply of Nutricia blend for Patimats for 8 months. This will help the girl gain weight, improve skin regeneration and allow the body to fight infections. And most importantly, it will give strength for growth and life. Your help will provide Patient with nutritional support for almost a whole year. Without this, it is impossible to live with such a rare and serious disease. Please support Patimat!

Donors

882
Слевин

Слевин

4 368 ₽ • 5 months ago

Черный Лебедь

Черный Лебедь

500 ₽ • 5 months ago

Айгуль Сарипова

Айгуль Сарипова

100 ₽ • 5 months ago

Горный Лев

Горный Лев

50 ₽ • 5 months ago

Мышиный лемурДлиннохвостая ШиншиллаДаурский ЁжРечной Бобр
882 helping

Comments

3
Иисус Целитель
Иисус Целитель5 months ago

Господь Целитель твой 🙏🙏🙏

Лучший Припас Богобоязненность
Лучший Припас Богобоязненность5 months ago

Бедная малышка, пусть Всевышний Аллах облегчит тебе при помощи добра и блага, и дарует радость твоему сердцу в дунья и душе в Ахыра, амин🤲🏽

Индский Дельфин
Индский Дельфин5 months ago

❤️

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