Patimat will turn 15 in March, although she looks much younger due to her illness. The cause is a severe form of epidermolysis bullosa, a rare genetic skin disease. People like her are called "butterflies": the strength of their skin is so low that any touch can cause injury. Only daily bandages, which perform the function of a "second skin", save.
In severe cases, the disease also affects the mucous membranes. Patimat's esophagus is affected, which is why she cannot eat regular food. To prevent the girl from dying of exhaustion, doctors installed a gastrostomy tube for feeding her directly into her stomach. Now Patimat's life and physical condition are completely dependent on specialized mixtures.
For "butterflies", proper nutrition is a medicine. Their bodies are constantly losing proteins and iron and spending enormous resources on wound healing. Special therapeutic mixtures work like a dressing, only from the inside: they make up for the deficiency of trace elements and provide the building material for tissue repair.
We are opening a collection for an annual supply of Nutricia blend for Patimats for 8 months. This will help the girl gain weight, improve skin regeneration and allow the body to fight infections. And most importantly, it will give strength for growth and life.
Your help will provide Patient with nutritional support for almost a whole year. Without this, it is impossible to live with such a rare and serious disease. Please support Patimat!
Verified by Tooba
Verified by Tooba
