Shamil has Kindler syndrome. This is one of the subtypes of epidermolysis bullosa, a rare genetic disease in which the strength of the skin and mucous membranes decreases.
Now there is a difficult period in the guy's life: due to the fact that the esophagus is constantly injured when swallowing food, it has narrowed. Shamil finds it increasingly difficult to eat and even drink. Dental problems have been added to this: due to the specific nature of the disease, the "butterflies" are rapidly losing their teeth. Not every dentist is ready to work with them – few people understand how to handle such a vulnerable mucosa in conditions of limited dental access (scars around the lips do not allow the mouth to open wide).
Shamil needs to be hospitalized in a federal medical center, where qualified doctors who understand the specifics of his diagnosis will be able to help him – perform an operation to expand his esophagus and cure all his teeth at one time under anesthesia.
The Butterfly Children Foundation opens a collection for travel expenses for Shamil and three more foundation wards to places of treatment and rehabilitation. For families from the regions, the cost of a flight often becomes an insurmountable barrier to medical care.
Verified by Tooba
Verified by Tooba
