Maksudov Adam is a little over a year old. From the first days of his life, he was forced to fight for his life: he was born with a serious and incurable disease, epidermolysis bullosa.
His mother does not restrain herself, talking about the terrible state in which she found herself when she first saw her son. And the doctors then, unfortunately, could not help. Epidermolysis bullosa is a very rare, poorly understood disease that most physicians will never encounter in their entire practice.
In the first days, the illness was not distinguished - and my mother rushed to save Adam on her own. But it seemed that it was impossible to find a way out: sea buckthorn oil was already being used, and the bandages with which the baby was bandaged only made it worse: they stuck to the wounds and they bled more.
At two months old, the boy got into intensive care - and there, literally on the edge of life and death, there was a way out. There, the woman was explained what BE and that her son is a butterfly. This is the name for people suffering from this disease, because their skin becomes fragile, like the wings of a butterfly.
Adam was saved - he had already undergone three blood transfusions, and his parents, thanks to the advice of the fund's specialists, learned how to properly care for the baby's skin and bandage him.
But the funds required for this - special dressings, creams and ointments - are very expensive. With your support, the Butterfly Children Foundation will assemble a box with all the necessary medicines and give it to the family in Dagestan.
