Muslimat is going through the same journey for the second time — from anxiety and uncertainty to understanding how to help a child with epidermolysis bullosa. Both of her sons were born with this rare genetic disease.
When the younger son, Adam, was born in 2026, the mother already knew a lot. Gentle daily care, constant attention to the condition of the skin, and the need to be especially attentive to any changes.
The family lives in Dagestan, and Adam receives specialized medical care at federal clinics. Such trips are necessary so that doctors can comprehensively assess his condition, adjust his treatment, and prevent possible complications in a timely manner.
But before they can see the specialists, the family has to cover a long distance.
The foundation helps cover the travel expenses for Adam and other children with epidermolysis bullosa and ichthyosis, who need to come for examination and treatment at federal centers.
Support the fundraising. Your donation will help children from different regions get to doctors and receive the necessary specialized care.
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