Nika finally got an activity chair! Five children who are under the care of the Children’s hospices received help as well

Dom s mayakom

Foundation Moscow

Last spring Nika got a comfortable activity chair. Unfortunately, in February 2022 the situation in Russia did become far from predictable. The supply chain of medical equipment and technical means of rehabilitation was heavily affected. It turned out that the activity chair we had raised funds for was out of stock. A further shipment was not ensured. However, there was the last one activity chair of this model left on our warehouse. Given the shortage, we decided to hand this chair over to Nika’s family. Hence, the donations were redistributed to meet other families’ needs. Dear friends, we were able to help five families who have been under the care of the Moscow Children’s hospice and Moscow Oblast Children’s hospice. Thanks to you, the children with life-limiting diseases were provided with the foods for special medical purposes and the individual pieces of orthopedic equipment. Maryana is the youngest child you helped. She is one year old. The girl has spinal muscular atrophy type 1. It is a rare genetic disease resulting in progressive muscle wasting. Maryana received ankle foot orthoses. These external medical devices help avoid potential complications of SMA—joint and limb deformity. We are grateful for the support of the Tooba users!

Report

Campaign information

Nika needs a new comfortable wheelchair to use at home!

Nika is 12 years old. He started 6th grade. Nika leads a perfectly normal teenage life: he plays online games, enjoys socializing with his friends and his elder brother, and spends much time on the internet. Nika takes a blogging and moviemaking course on Sundays. Actually, he doesn’t know yet what he wants to do when he grows up. Nika likes painting cartoon decorations, building Lego models, and sometimes helping his dad with cooking. He has to write a lot in school that’s why he does arm exercises. They are necessary to maintain dexterity. In contrast to his peers, it’s physically harder for Nika to complete tasks—school assignments and game missions alike. Nika has spinal muscular atrophy (SMA) type 2. It is the rare genetic disease which causes gradual muscle weakness and loss of movement. He cannot walk so he uses an electric wheelchair. Last year Nika started to take a medicine which slows down the development of his disease. Thanks to injections of the medicine and his usual practice, Nika has become stronger and more resilient. Now Nika needs a new comfortable wheelchair to use at home because the old one has been in regular use for over 3 years.

Donors

1085
Шовкринский Кусок

Шовкринский Кусок

2 571 ₽ • 4 years ago

Ghost Toober

Ghost Toober

40 ₽ • 4 years ago

Береговая полевка

Береговая полевка

100 ₽ • 4 years ago

Ciconia boyciana

Ciconia boyciana

200 ₽ • 4 years ago

Филиппинская гимнураМирзехан АбдуллаевНамигАтланческий осетр
1085 helping

Comments

2
Розовый пеликан
Розовый пеликан4 years ago

🙏🏻🌸

БукIана Гьаниб
БукIана Гьаниб4 years ago

😊

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