Samia went through a course of rehabilitation. The results are great!

Pomogi.Org

Foundation Moscow

Samia needs rehabilitation because she has been unable to move since birth because of her disease, type 1 SMA. Her muscles atrophied, she developed scoliosis and joint contractures, which is when the limbs at the bends don't move or move poorly. Then Samia received a drug that corrected the genetic breakdown and allowed her muscles to become strong and mobile. If Samia continues rehabilitation, she can forget about her disease, learn to run, jump, walk freely, and breathe as much as she wants. But right now she's in the middle of her journey. And the treatment you paid for helped her take another big step forward. For now Samija walks in a wheelchair. But she can sit up to 20 minutes without the corset - her back muscles are stronger. The spine is getting straighter. Her legs can flex in the knees and are more mobile. And her hands are already moving beautifully - Samia eats by herself, can make beads for her mother and draw a picture. She can already stand on all fours for 10 minutes, and every day she improves her records. The girl's parents have no doubts that the disease will be overcome. During the course Samija was charging her doctors and patients with her energy - she was happily doing everything the doctors asked her to do. And even was a little sad when her working day was coming to an end, even though her daddy, who had been by her side for two weeks, tried to entertain her daughter with walks in the evenings. The girl's parents thank everyone who helped their child get even closer to a fuller life. Thank you for being there at the right moment and helping so quickly!

Report

Campaign information

Samia needs reconstructive treatment to start walking

Is it acceptable to say this about a child born with type 1 SMA (spinal muscular atrophy), but Samia practically won the lottery. She received a shot of the world's most expensive drug, Zolgensma. The drug, worth more than $2 million, is injected just once, adds the missing "brick" to the DNA, and the deadly disease stops killing the child, and the muscles stop weakening and shutting down. Now Samia will live. But whether she will move and walk is still a huge question. Right now her muscles don't know that they have to move, they have no strength in them, and the connections in the brain that make a person walk, run, grab, sit... have not been formed. And lessons with specialists are needed to help the child form these connections and get stronger. But in the republic, where many doctors first heard about Samia's diagnosis from the lips of her parents, there is no support. The family has been waiting for a stroller and a home stroller for a year. Rehabilitation is not paid for at all. Previously children with this diagnosis never lived long enough to need all this. But Samia was lucky. However, just surviving is not enough to be lucky. Samia can walk and run, and she's sure to dance. Help it happen!

Donors

775
Ghost Toober

Ghost Toober

4 239 ₽ • 4 years ago

Dad U U

Dad U U

300 ₽ • 4 years ago

Разият Бижитуева

Разият Бижитуева

50 ₽ • 4 years ago

Кювьерова хутия

Кювьерова хутия

15 ₽ • 4 years ago

имяХабиба МагомедоваХади ЕвлоеваЭрач Ахрор
775 helping

Comments

4
Императорский тамарин
Императорский тамарин4 years ago

Пусть Аллах исцелит наилучшим исцелением.

Азиатский гепард
Азиатский гепард4 years ago

скорейшего выздоровления, малышка

Фонд Помоги.Орг
Фонд Помоги.Орг4 years ago

Вы невероятные! Всего за сутки собрана бОльшая часть суммы! Спасибо! ❤️Осталось совсем немного, что я помочь Самии!

МР
МР4 years ago

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