Roma received an inhaler and a package of medicines!

AiF. Dobroe Serdce

Charitable foundation · Moscow

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of RUB 126,765

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With your help, it was possible to assemble a parcel with a margin of hyanob, as well as purchase a new inhaler for Roma. The solution for inhalation has already arrived in Tyumen, the boy’s parents will receive a new nebuliz in the coming days!

Recall that Roma has cystic fibrosis. Because of this genetic disease, the child’s body produces too thick a secret that clogs the lungs, not allowing to breathe normally. Due to daily inhalations with Gyaneb, Roma lived without exacerbations. But recently the family moved to Tyumen, and instead of a proven drug, they were given an analogue. Because of it, Roma began to attacks dry coughing, it was necessary to increase the number of inhalations, which almost disabled their old nebulizer.

- Thanks to everyone who helped us with the purchase of medicine and an inhaler, - says Roma's mother Marina. - With Gyaneb, his son's condition has improved markedly, he clears his throat easily. We also reduced the number of inhalations to three per day. This allows not only to go to kindergarten, but also to attend circles - vocals, dancing, modeling.

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About the campaign

To breathe, Roma needs a new inhaler and medicine

Three-year-old Romka Pikulev is never shy of anyone and easily makes friends. "Hi, I'm Roma Andreevich!" - he starts to get acquainted and becomes the soul of the company in a couple of seconds. Looking at Roma, you would never think that this lively boy is terminally ill with cystic fibrosis. Thanks to effective treatment, it was possible to keep his disease under control. And now the situation has changed.

It is hard for a healthy person to imagine the life of a young cystic fibrosis patient. Because of genetic defects, the child's body produces a secret too thick, which clogs the lungs, preventing normal breathing. Five inhalations a day, kinesitherapy and a bunch of medications help remove the sputum from the body.

Marina Pikuleva knows very well that with the inhalation solution "Hyaneb" her son coughs up easily. The high content of hyaluronic acid in the drug does not dry out the children's mucosa. Roma has been on Hyaneb for the last year and a half without any exacerbations. But recently the family moved to another region, and there they were given an analogue instead of the familiar effective drug, which gave Romka a dry cough. To cope with the attacks, they have to do extra inhalations with Berodual. And this is bad for a child's heart.

In their effort to get free "Gianeb," the Pikulevs got bogged down in correspondence with officials and even went to court. But it takes time to get this life-saving medicine, and their son needs to breathe freely now.

Until recently, the parents would have bought the medicine themselves - they only need two packs for a month. But the price of the drug has almost doubled, and now the Pikulevs cannot afford "Gianeb". Their main helper, the inhaler, also began to malfunction (it has been repaired twice lately). Now it is scary even to breathe on it, and without it - Roma suffocates in the truest sense of the word.

We can support the Pikulevy's by collecting a parcel with a supply of medicine and a new nebulizer. So that Romka could breathe freely, go to kindergarten, and continue to be the soul of any company!