Roma received an inhaler and a package of medicines!

Three-year-old Romka Pikulev is never shy of anyone and easily makes friends. "Hi, I'm Roma Andreevich!" - he starts to get acquainted and becomes the soul of the company in a couple of seconds. Looking at Roma, you would never think that this lively boy is terminally ill with cystic fibrosis. Thanks to effective treatment, it was possible to keep his disease under control. And now the situation has changed. It is hard for a healthy person to imagine the life of a young cystic fibrosis patient. Because of genetic defects, the child's body produces a secret too thick, which clogs the lungs, preventing normal breathing. Five inhalations a day, kinesitherapy and a bunch of medications help remove the sputum from the body. Marina Pikuleva knows very well that with the inhalation solution "Hyaneb" her son coughs up easily. The high content of hyaluronic acid in the drug does not dry out the children's mucosa. Roma has been on Hyaneb for the last year and a half without any exacerbations. But recently the family moved to another region, and there they were given an analogue instead of the familiar effective drug, which gave Romka a dry cough. To cope with the attacks, they have to do extra inhalations with Berodual. And this is bad for a child's heart. In their effort to get free "Gianeb," the Pikulevs got bogged down in correspondence with officials and even went to court. But it takes time to get this life-saving medicine, and their son needs to breathe freely now. Until recently, the parents would have bought the medicine themselves - they only need two packs for a month. But the price of the drug has almost doubled, and now the Pikulevs cannot afford "Gianeb". Their main helper, the inhaler, also began to malfunction (it has been repaired twice lately). Now it is scary even to breathe on it, and without it - Roma suffocates in the truest sense of the word. We can support the Pikulevy's by collecting a parcel with a supply of medicine and a new nebulizer. So that Romka could breathe freely, go to kindergarten, and continue to be the soul of any company!