Magomed and Dmitry live at different ends of Russia, they are unfamiliar with each other, but they are united by one diagnosis for two - generalized epidermolysis bullosa, a dystrophic form.
Behind these medical terms is the following: epidermolysis bullosa is a severe genetic disease in which the connection between the layers of the skin is broken, due to which it can be injured from any touch. The generalized form means that the entire body is affected. And, finally, the dystrophic type means that damage occurs in the deep layers of the skin (which means wounds heal harder) and the disease also affects the mucous membranes.
And the guys are united by the fact that they are adult wards of the Butterfly Children Foundation. At the time of their birth, the fund did not yet exist, almost no one in Russia knew how to treat epidermolysis bullosa, which led to the fact that the children developed severe concomitant complications that poison their lives.
To control the disease, they periodically require hospitalization, which allows them to undergo a full examination, organize a consultation of specialists, treat complications, and decide what to do next.
We often turn to you for help for small butterflies. But epidermolysis bullosa is a lifelong diagnosis, the fund does not abandon adult wards and does not leave them alone with the disease.
It is very important for Dima and Magomed to know that they are not alone, and there are people who will come to their aid!
Как радостно, чтоб сбор закрылся, Альхамдулиллах 😭😭❤️❤️❤️
Скорейшего обследования и выздоровления!
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