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Lera received a parcel with a nebulizer and medicine

AiF. Dobroe Serdce

Charitable foundation · Moscow

collected

of RUB 143,378

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Lera Chupova has a new nebulizer and inhalation solutions. This means that she will breathe easier and live a full life with cystic fibrosis. All this is possible thanks to you.

A 9-year-old girl has cystic fibrosis. It is a disease which requires daily inhalations, special medicines, and constant physical activity to clear her lungs of the viscous sputum. Even now that Lera is receiving the gene corrector "Tricaftu" from the government and has forgotten about coughs and bronchitis, the doctors strongly advise to continue therapy. They do not joke about cystic fibrosis, even when you feel great and have tests like a normal healthy child, you cannot interrupt treatment.

"I would like to express my gratitude to all the caring people who helped my daughter to breathe with full chest, in the literal sense of the word. I am very glad that there are people who care about children's health. Thank you everyone who cared and helped my daughter!

We believe that with the gene medication Laura will need neither medicines nor medical equipment. But until that happens, thank you for your support to children with cystic fibrosis!

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About the campaign

Lera has cystic fibrosis and needs a nebulizer and medication for inhalation

Every day of nine-year-old Lera's life is scheduled on a minute-by-minute basis. She sings, dances, and goes to school. And in between she has six daily inhalations, massages, and kinesitherapy. This is the only way to get viscous sputum out of the airways and avoid complications. And also - to stay afloat and wait for the latest gene therapy drugs that can "recode" broken genes.

A month and a half ago, Lera began taking the miracle drug. Within a short time, the girl gained four kilos and became noticeably taller. Her liver and sweat samples fell to fantastic levels, like those of a healthy child!

But there is one important condition for treatment with the modern drug. Even though the child feels perfectly healthy, he has to keep doing inhalations during the first year of treatment. That is why Lera badly needs a nebulizer with consumables (the old device has exhausted its resource) and the drug "Hyaneb".

Let's help her. And let's believe that she will cope with the disease herself!