Every day of nine-year-old Lera's life is scheduled on a minute-by-minute basis. She sings, dances, and goes to school. And in between she has six daily inhalations, massages, and kinesitherapy.
This is the only way to get viscous sputum out of the airways and avoid complications. And also - to stay afloat and wait for the latest gene therapy drugs that can "recode" broken genes.
A month and a half ago, Lera began taking the miracle drug. Within a short time, the girl gained four kilos and became noticeably taller. Her liver and sweat samples fell to fantastic levels, like those of a healthy child!
But there is one important condition for treatment with the modern drug. Even though the child feels perfectly healthy, he has to keep doing inhalations during the first year of treatment.
That is why Lera badly needs a nebulizer with consumables (the old device has exhausted its resource) and the drug "Hyaneb".
Let's help her. And let's believe that she will cope with the disease herself!
Туберы, спасибо за поддержку! С муковисцидозом можно жить долго, активно и полноценно. Давайте вместе поможем Лере 🙌