Khadija was born with a very difficult diagnosis - cardio-facio-skin syndrome. This is an extremely rare (no more than 300 cases have been described worldwide) genetic pathology in which the cardiovascular system and skin suffer simultaneously.
Khadija has a heart defect and ichthyosiform erythroderma, a skin lesion very similar to ichthyosis. The disease affects the girl's physical and mental development, but her family does everything to make the baby's life as full of joy and bright colors as possible.
This summer, Khadija will turn 3 years old, and she needs a verticalizer so that her muscles do not atrophy and her heart problems do not worsen. Khadija also needs an orthopedic wheelchair capable of keeping her body and head in the correct position and special medical nutrition.
Unfortunately, medicine is not yet able to treat her disease, but we can improve the quality of her life and help a family that is exhausted by doing everything possible for their girl!
Дай Аллах тебе здоровья и долгих лет счастливой жизни❤️
Пусть Аллах одарит всех болеющих исцелением!
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Здоровья малышке 🥹