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Khadija received a wheelchair for disabled children, a standing support for disabled children and specialized food!

Deti-babochki

Charitable foundation · Moscow

collected

of RUB 331,407

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Dear friends, thanks to everyone who helped raise the necessary amount for Khadija!

Khadija was born with a complex diagnosis - cardio-facio-cutaneous syndrome. This is an extremely rare (no more than 300 cases have been described worldwide) genetic pathology, in which the cardiovascular system and skin are simultaneously affected.

“I would like to express my deep gratitude to the Butterfly Children charity foundation and the tubers. It is difficult to find words to describe the joy that we were provided with financial assistance to purchase a stroller, an uprightizer and a specialized formula. It is even more difficult to find words of gratitude for this help. May your kindness and generosity return to you a hundredfold. I wish you all the best, good health, prosperity and more warmth on your life path. For the first time, we will have such a specialized stroller that will allow us to comfortably place and properly secure our girl without restricting her movements. By helping us, you gave us not just material value, but gave us joy and hope. Thank you for not leaving us alone with our misfortune,” says Khadija’s mother.

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About the campaign

Khadija has a genetic disease. She needs a wheelchair, an orthopedic chair and pillows!

Khadija was born with a very difficult diagnosis - cardio-facio-skin syndrome. This is an extremely rare (no more than 300 cases have been described worldwide) genetic pathology in which the cardiovascular system and skin suffer simultaneously.

Khadija has a heart defect and ichthyosiform erythroderma, a skin lesion very similar to ichthyosis. The disease affects the girl's physical and mental development, but her family does everything to make the baby's life as full of joy and bright colors as possible.

This summer, Khadija will turn 3 years old, and she needs a verticalizer so that her muscles do not atrophy and her heart problems do not worsen. Khadija also needs an orthopedic wheelchair capable of keeping her body and head in the correct position and special medical nutrition.

Unfortunately, medicine is not yet able to treat her disease, but we can improve the quality of her life and help a family that is exhausted by doing everything possible for their girl!