Khadija received a wheelchair for disabled children, a standing support for disabled children and specialized food!

Deti-babochki

Foundation Moscow

Dear friends, thanks to everyone who helped raise the necessary amount for Khadija! Khadija was born with a complex diagnosis - cardio-facio-cutaneous syndrome. This is an extremely rare (no more than 300 cases have been described worldwide) genetic pathology, in which the cardiovascular system and skin are simultaneously affected. “I would like to express my deep gratitude to the Butterfly Children charity foundation and the tubers. It is difficult to find words to describe the joy that we were provided with financial assistance to purchase a stroller, an uprightizer and a specialized formula. It is even more difficult to find words of gratitude for this help. May your kindness and generosity return to you a hundredfold. I wish you all the best, good health, prosperity and more warmth on your life path. For the first time, we will have such a specialized stroller that will allow us to comfortably place and properly secure our girl without restricting her movements. By helping us, you gave us not just material value, but gave us joy and hope. Thank you for not leaving us alone with our misfortune,” says Khadija’s mother.

Report

Campaign information

Khadija has a genetic disease. She needs a wheelchair, an orthopedic chair and pillows!

Khadija was born with a very difficult diagnosis - cardio-facio-skin syndrome. This is an extremely rare (no more than 300 cases have been described worldwide) genetic pathology in which the cardiovascular system and skin suffer simultaneously. Khadija has a heart defect and ichthyosiform erythroderma, a skin lesion very similar to ichthyosis. The disease affects the girl's physical and mental development, but her family does everything to make the baby's life as full of joy and bright colors as possible. This summer, Khadija will turn 3 years old, and she needs a verticalizer so that her muscles do not atrophy and her heart problems do not worsen. Khadija also needs an orthopedic wheelchair capable of keeping her body and head in the correct position and special medical nutrition. Unfortunately, medicine is not yet able to treat her disease, but we can improve the quality of her life and help a family that is exhausted by doing everything possible for their girl!

Donors

1002
Белолобый индри

Белолобый индри

76 608 ₽ • 3 years ago

Наида Г

Наида Г

50 ₽ • 3 years ago

Краснолобый черный лемур

Краснолобый черный лемур

100 ₽ • 3 years ago

Тубер

Тубер

10 ₽ • 3 years ago

РамазанКожистая черепахаЧерная коатааля
1002 helping

Comments

5
Человек
Человек3 years ago

Дай Аллах тебе здоровья и долгих лет счастливой жизни❤️

Ахмед Дарсигов
Ахмед Дарсигов3 years ago

Пусть Аллах одарит всех болеющих исцелением!

Мурадик
Мурадик3 years ago

Анна Григорьева
Анна Григорьева3 years ago

Здоровья малышке 🥹

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