8-year-old Manisa is an active, restless girl, she loves to dance, although her mother prefers her daughter to do other favorite things - reading and drawing. It’s safer this way: the girl has epidermolysis bullosa, a rare genetic disease in which the skin cannot perform a protective function and needs protection itself.
Epidermolysis bullosa makes Manisa's skin so fragile and vulnerable that any, even gentle, touch can lead to extensive wounds. Every day it is necessary to cover the skin with multi-layer bandages, which, in fact, form a protective cocoon that protects the girl from injuries.
Ordinary bandages in this case are not suitable - they only additionally injure the skin and aggravate the course of the disease. Special atraumatic simulated dressings, silicone pads to protect particularly vulnerable areas and several types of elastic bandages are needed. Plus ointments and special products for skin treatment.
In addition, special nutrition is very important for Manisa - with bullous epidermolysis, the gastrointestinal tract often suffers, since the disease affects not only the skin, but also the mucous surfaces, which makes it difficult not only to eat, but also to absorb vital nutrients.
We can give little Manisa a full life without pain every day. Join the collection, let's help the girl together!
Будь счастлива, Маниса! ❤️
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