Alexandra recently turned 6 years old, she is the second youngest child and the favorite of all family members. The girl goes to the speech therapy group of the kindergarten and actively attends various circles: she is engaged in drawing, modeling and applications. Now she is learning to read and dreams of going to school.
Sasha was born with a very rare hereditary genetic disease from the category of phacomatoses. The diagnosis was made in the year when Sasha had
the first spots on his skin. Every year she is examined at
a neurological clinic. This year, she was found to have an education
in the brain and heart. Tumors are benign, but their whole
danger lies in the fact that they can grow and put pressure on the surrounding
tissues of vital organs, which is why there is a huge danger
to health and life, the danger of becoming disabled.
Now she needs to make an accurate diagnosis, conduct a molecular genetic study in order to start treatment as soon as possible and save her life. Please help Sasha to get a chance for a healthy childhood.
