Vladislav underwent genetic testing

AiF. Dobroe Serdce
Foundation • Moscow
Thanks to your support Vlad went to a specialized center and gave biomaterial for genetic research. Without it, doctors could not choose a treatment tactic for a patient with cystic fibrosis. The results of the analysis have already come, according to them the young man can use new genetic drugs. Now Vladislav is engaged in the registration of these medicines for free. Thank you for your support, tubers!
The 23-year-old Vlad has had cystic fibrosis since birth. Due to a gene mutation, the young man's lungs, stomach and other internal organs are clogged with viscous phlegm. To get rid of coughing fits, shortness of breath and constant inflammation, Vlad has daily inhalation treatments with medicines. But despite the treatment, his lung function has been declining year by year, approaching dangerous levels. Doctors recommended Vlad expensive gene drugs. But in order to get them, he had to undergo an expensive genetic examination, which is not included in the list of obligatory medical insurance. Thanks to your support everything worked out.
“I passed the examination, and the results of the tests are pleasing: I can count on receiving gene drugs free of charge. I have already prepared an appeal to Moscow with Perm doctors. The only thing left to do is to wait for the decision of the medical commission. This is not a quick process, but it is a start. I thank everyone who has contributed to my collection. I could not have imagined that more than 500 strangers would suddenly influence my future life during this difficult period for me. A huge human thank you!” - Vladislav shares.
Meanwhile Vlad works, does not miss daily inhalations and is happy that diseases and exacerbations bypass him. This means that he has enough health reserves to wait for the gene medicine. Thank you for your help, toobers!
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Campaign information

Vladislav has cystic fibrosis and needs an expensive test
When Vladislav was born and diagnosed with cystic fibrosis, the disease was considered incurable. But now gene drugs have been invented. Only you can get them by undergoing an expensive examination.
Due to a genetic malfunction, viscous phlegm clogs the lungs of a 23-year-old guy, causing coughing, shortness of breath and constant inflammation. His morning starts with inhalations. And afterwards, Vladislav goes to work without choking from coughing fits. Despite treatment and inhalations, his lung function is declining year by year, approaching dangerous levels.
The disease can be countered with the help of targeted therapy.
Modern medicine treats breakages in genes and makes the life of cystic fibrosis patients qualitatively better. In practice there are many examples when gene correctors helped patients with such gene mutations as Vladislav's to live a full life. But in order to get the drug for free, you need to take tests.
Vladislav really needs our help!
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Зайнаб
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500 ₽ • 1 year ago

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13 ₽ • 1 year ago




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