Asiyat is 16. And all these years she has been living literally despite the disappointing prognoses of doctors. The girl has two rare and severe genetic diseases - Kabuki syndrome and congenital immunodeficiency. The first disease is manifested by skeletal anomalies, heart defects and severe developmental delay. And the second - absolute defenselessness. Asiyat's body is unable to cope with even the most harmless infection on its own.
The girl has undergone 6 radical heart surgeries, 3 clinical deaths, dozens of pneumonias and countless examinations and painful medical procedures. Unfortunately, it is impossible to cure Asiyat completely, but thanks to proper supportive therapy the girl will be able to live, gradually make progress in motor and speech skills and develop. Her mom says that Asiyat is a real fighter - she will definitely cope!
Dear tubers, we are opening a collection to pay for vital medications for Asiyat and Danila - another ward with congenital genetic immune anomaly. Let's help the guys together, let them have a chance to recover!
