13-year-old Asiyat has dystrophic epidermolysis bullosa (EB). This means that every day the girl goes through the struggle with the pain that her body wounds inflict on her.
The fact is that Asiyat's skin is so thin that it reacts to any touch with the appearance of bubbles. When they burst, they leave painful wounds that can get infected. Special bandages help protect the girl's skin. They need to be changed every day, and wounds should also be carefully treated, and healing bandages should be applied.
Thanks to such bandages, Asiyat can be an ordinary child for at least some time.
Asiyat loves to read, study and learn new things. She goes to school with pleasure if she feels well. The teachers point out that she is very capable.
And the usual walking tour of the city for you and me will not only tire children's legs, it will cause the formation of blisters on the feet and unbearable pain.
Mom and Dad Asiyat know that it is possible to make their daughter's dream come true if you take proper care of your skin. Special ointments help heal wounds, thin breathable bandages protect the skin from external influences, but at the same time do not hinder movements and allow Asiyat to actively live every day.
In order for a girl to live without pain for two months, 156,000 rubles are needed. This amount will be enough for the purchase of dressings and medicines. Even a little help is important!
Asiyat's big dream is travel, she really wants to see St. Petersburg. But it will not be easy, because even a simple walk or ride on public transport is fraught with many dangers. It is not easy for a child with EB to hold onto the handrails on the bus: if the vehicle slows down sharply, strong squeezing of the palm can cause the skin on it to burst. And the delicate hands of Asiyat will be injured, which will subsequently lead to the splicing of the fingers.
