Stas was a social orphan—a child whose parents exist only on paper. The disease did not affect the boy's intelligence, but it distorted his body and "froze" his arms and legs in unnatural positions. His medical record indicated a diagnosis of cerebral palsy. Stas experienced constant pain, and the staff at the orphanage did not know how to help him.
Thanks to the support of friends from the foundation, much was accomplished for Stas, alleviating his pain, but despite everything, the disease progressed. After some time, Stas struggled to turn his head, and it became difficult for him to speak and swallow. Through comprehensive genome sequencing analysis, a rare genetic disease was diagnosed, which occurs in one person out of 200,000. In September 2021, Stas was prescribed the correct treatment, and he immediately began to feel better. First, he started crawling, and then the mobility in one of his arms returned. By December, Stas was already helping to decorate the Christmas tree. His second arm came back to life in the summer of 2022; it felt like a miracle. Then the boy began to sit up, and eventually, something incredible happened—he took a few steps! Yes, with support, but for the first time, he was not in a wheelchair or in bed!
Stas needs regular rehabilitation courses to maintain the skills he has acquired and to gain new ones! Help us fund a rehabilitation course for a boy with a challenging fate but an incredibly strong character.
