9-year-old Aishat Shikhkebirova has the most severe form of epidermolysis bullosa - dystrophic.
This means that the disease manifests itself not only on the skin, but also affects the internal organs, weakens the immune system, and makes bones unnecessarily fragile.
But despite this, Aishat is growing up as an ordinary child. With your unusual interests! For example, she plays chess, albeit quite recently, but very quickly learns complex combinations and already competes with dignity with more experienced players.
Dad instilled in her a love for this game, and now Aishat can spend a lot of time at the chessboard, but the point is not only in love of chess.
Bruises and scratches are nothing for an ordinary child, and certainly not a hindrance to games. But in the case of Aishat, a careless movement, push or blow, even a light one, can leave a strong wound on the skin, which will hurt for a long time and not heal. It is because of this that the girl moves little, often refuses active games and walks with friends.
In order for the restrictions and pain to be as little as possible, Aishat needs to constantly take care of the skin, make sure that the wounds do not become inflamed, treat them in time with healing ointments and creams, and apply atraumatic dressings and viscose bandages on top.
At normal times, the girl needs dressings several times a day. But the summer is still ahead, and in the heat, the condition of the wounds on Aishat's body worsens, changing the dressings and bandages is required even more often.
Mom and Dad Aishat, every day they are fighting for the life of their little girl. They do not give up, but their strength is already running out and right now they really need our support! The amount of the fee is 244,000 rubles. The Butterfly Children Foundation will buy everything needed for dressings with a 2-month supply and send it to Aishat.
