Rabiyat is 18 years old, and since birth she has been living with a rare genetic disease — epidermolysis bullosa (EB). Her skin is so vulnerable that any touch can cause serious injury.
Since childhood, the Butterfly Children Foundation has been providing Rabiyat with the necessary assistance: it organizes hospitalizations, provides bandages, and even arranges dental treatment, which is not available in her region.
Over the years, the disease does not recede, on the contrary: the consequences of complications accumulate. Rabiyat's fingers grow together, which often occurs in patients with severe forms of EB. Hands are subjected to special stresses in life, so they suffer the most. Rabiyat used to lay out diamond mosaic paintings and knit a lot, today she can only dream about it. Many of the usual actions — picking up a spoon, brushing her teeth — have become almost impossible for the girl.
These complications can be slowed down with regular bandages using special anti-traumatic materials, but the state does not provide them to adult patients.
Let's help Rabiyat live without pain together!
Садака