Manisa Gapizova was visited by a doctor and a nurse of the patronage service!

Little Manisa has a serious adult look and at the same time a mischievous childish smile, which is simply impossible not to smile back. It seems as if the life of this girl is the same as that of her peers: loving family, friends and favorite toys. It is simply impossible to believe that she is in great pain every day. This pain is caused to Manisa by her skin, thin and brittle, like a butterfly's wing. She became such because of the disease - dystrophic epidermolysis bullosa. The most sore spot is the skin. Wounds on it are formed from anything - careless touching, hitting or falling. In order to simply draw or make an applique, Manisa must necessarily bandage each finger, because even from slight rubbing against a pencil or felt-tip pen, a bubble may appear on it, and in its place - a wound. If, during the application, colored paper with glue accidentally sticks to the hand, it will only be possible to tear it off with the skin ... Butterfly children - this is how babies are called with such a rare diagnosis as Manisa's. Their life from an early age depends on proper skin care and control of the condition of the whole organism, because, alas, epidermolysis bullosa affects not only the skin. It is for this reason that it is important to regularly do tests and examinations, have access to the advice of qualified doctors and a set of the right care products. All this helps to prevent worsening of the condition. The patronage service of the Butterfly Children Foundation is ready to help Manisa's family and her parents. The Butterfly Children Foundation has been helping children with epidermolysis bullosa to maintain health and live a fulfilling life with a minimum of restrictions for ten years. Medical specialists of the fund's visiting patronage service have extensive practical experience in working with this disease and know the answers to all questions about the life and health characteristics of especially delicate patients. Therefore, the patronage service of the foundation is a truly unique team. They will bring with them medicines, special fixation bandages and bandages. They will conduct an examination, take the necessary tests, give recommendations on nutrition and, of course, adjust the care for Manisa's mother. In order for the doctor and nurse of the patronage service to come to Manisa as soon as possible, 297,768 rubles are needed. This amount will be enough to pay for the travel of specialists and the purchase of a set of dressings and medicines, which will be enough for the girl for 1.5 months. Manisa's family and the girl herself are looking forward to the doctors. Let's unite and help little Manisa get the amount of help she needs in time.