Bulat will soon turn 5. The baby lives with a severe and rare genetic disease — ichthyosis. From the first minutes of his life, his skin requires special care: bathing twice a day with special moisturizing and exfoliating compounds, repeated application of therapeutic emollient creams.
Without constant hydration, Bulat's skin instantly becomes dry and hard, like sandpaper. At the same time, it is as thin as a film, and any careless movement can turn into a bleeding crack. Creams and ointments can alleviate the boy's condition – to muffle itching, reduce the risk of injury and prevent inflammation. But such funds are quite expensive and quickly consumed — one tube of emollient is enough, according to Bulat's mother, for a few days at most.
Despite his age, Bulat already understands that he is not like everyone else, and this upsets him. He dreams of making friends and going to kindergarten, but so far all attempts have been unsuccessful, partly because of the inability to provide proper skin care in the garden, partly because of the attitude of others. "Next year we'll try a private kindergarten," Mom says, and I'll also try to get a job there as a tutor or assistant. My son needs socialization, because in 2 years he will go to school."
The Butterfly Children Foundation opens a collection for the purchase of Bulat skin care products. Your support will help ease his discomfort and take a step towards a fulfilling life among his peers. Thank you for any help!
Желаю много сил всей вашей семье, мама - вы очень сильная женщина. Пусть Аллах поможет
Да облегчит тебе Булат Всевышний Аллах при помощи добра и блага все твои трудности, амин. Пусть все у тебя будет хорошо, никогда не сдавайся друг🥰
Пусть Аллах облегчит 🙏
Пусть Всевышний поможет тебе, Булат, через людей, пусть сбор скорее завершится и лечение поможет, выздоравливайте! Скорейшего исцеления! Аминь.