Egor has an orphan disease. He needs skin care products!

Egor is 11 years old, he has epidermolytic ichthyosis, a severe form of a rare genetic disease in which the skin cannot retain moisture. The boy has this form of the disease, when severe dryness and peeling are combined with the skin's tendency to injury, even with mild mechanical stress. "When Egor was just starting to crawl and walk, all his legs were covered in wounds," mom recalls. Egor studies at a correctional school, easily finds a common language with classmates, and in general he is a kind and open guy. But the disease restricts his daily routine: due to thermoregulation disorders, Egor can hardly stand the heat, he quickly experiences overheating, weakness and shortness of breath. He has a severe allergy to wool, and even had to give up his pet cat - the boy still remembers it with sadness. And in December 2024, Egor suffered a skin infection, after which his skin condition could not be stabilized. We are raising funds for bandages, moisturizing and softening care products that will help maintain the boy's skin in a satisfactory condition and avoid new injuries and inflammations. For Egor, this is the only therapy possible today. Let's support Egor so that there are fewer restrictions and pain in his life!