Yasmina will be 3 years old this summer. She leads an active life: she plays with children on the playground, draws, sings. The girl already understands everything and can say a lot, but when she was just born, the doctors' forecasts were very alarming.
Yasmina has epidermolysis bullosa (EB), a rare hereditary disease. Due to a genetic mutation, the body does not produce proteins that stitch together the skin layers. Therefore, even a light touch is enough to cause blisters and wounds. In severe cases, the disease also affects the mucous membranes. Yasmina has just such a case. "I remember the first year of my life as a terrible dream," says my mother. "There were blisters all over my body and even on my tongue."
Fortunately, the Butterfly Children Foundation appeared in Yasmina's life. The specialists taught the parents how to properly care for the skin, and helped to arrange the provision of the necessary dressings. This gave Yasmina the opportunity to live without pain, develop and explore the world around her.
Bandages for EB are special — multi-layered, atraumatic, they protect the skin and help prevent severe complications such as finger fusion. "Bandages are long and painful, but my daughter tolerates them like a little fighter," says my mother.
Now Yasmina needs to replenish her stock of dressings, because she needs them daily. Helping means giving a baby the opportunity to continue living the life of an ordinary child.
