Khatyn has had blood transfusions dozens and even hundreds of times. The procedure is repeated over and over, over and over again - from the moment the girl was diagnosed. The baby was only 3 months old.
Khatyn has a severe genetic blood disorder - beta-thalassemia, which disrupts the production of hemoglobin. Regular blood transfusions twice a month are necessary to survive.
And so, for all 10 years, Khatyn and her mother have been going to the hospital every 2-3 weeks for a blood transfusion. Trips for transfusions are not only a medical necessity, but also an ordeal. The girl's veins are very thin, it is difficult to find them. Sometimes it takes 8-10 attempts, the nurses hold the girl during the puncture.
Now Khatyn is older and more patient with treatment. But she already understands that she is sick. She asks questions herself. Once she asked: "Mom, why am I like this? All the other children are normal. And I didn't. Why was I born with an expiration date?"
Due to a blood disorder, Khatyn needs a bone marrow transplant. Khatyn's entire family is ready to help - but neither her mother, nor her father, nor her brother are suitable. as donors. There was no donor for Khatyn in the federal registry - there are no matches with anyone. The only hope is to wait for someone to appear in the international registry. But she needs help right now.
Right now, Khatyn needs the drug "Reblozil", which can maintain normal hemoglobin levels and replace at least some of the procedures. Tubers, support Khatyn!
