Sasha Anishchenko underwent the most difficult first stage of the operation: the electrodes were installed. The specialists started the most important process — the electrodes are “recording” the seizures. This is necessary in order to determine the epileptic foci with maximum accuracy for their further surgical removal. Doctors will be able to say for sure whether the epileptic foci have been stopped once the electrodes have completely recorded the cycle and the data has been deciphered.
But the main thing is already over. The boy has a real chance to live without seizures.
Sasha is the third, long-awaited son in the family. His two older sisters adore their brother, and every New Year, they make the same wish: "May Sasha get better." Maria, Sasha's mother, recalls that her pregnancy was wonderful, and the birth was the easiest. However, at seven months, the baby began to "freeze" for seconds. This marked the beginning of their journey.
In July, he turned seven years old. In September, he could have started attending a regular school, but his illness prevented him from doing so. The boy was diagnosed with pharmacoresistant epilepsy, a condition where medications are ineffective. He sometimes experiences up to 20 seizures per day. These seizures have a devastating impact on his childhood, as he struggles to recover and falls behind in his mental and language development.
The medications provided only temporary relief, and the constant seizures hindered his progress. The only chance to stop the nightmare is a complex two—stage operation at the National Research Medical Center. Burdenko. First, it was necessary to find the source precisely with the help of stereo-EEG monitoring and implanted electrodes.
The first attempt in 2022 did not provide complete data. Queues and postponements stole time. It was impossible to wait any longer. But everything has changed. Thanks to the users of the Tooba platform, the necessary expensive electrodes were paid for and purchased. Sasha got the opportunity to learn, play, talk and just be an ordinary child.
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Важная операция, которая может полностью вылечить мальчика. Поможем вместе 🙏🏼
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