Christiane is 13 years old, she has a rare genetic disease — ichthyosis, in which the skin does not retain moisture, becomes very dry, thickens, flakes and cracks. Often, such cracks become a gateway for infection. Ichthyosis affects not only the skin, but also the immune system, eyes, and hearing organs. In order to control the disease itself and prevent the development of complications, such patients require regular medical supervision in a hospital setting and rehabilitation.
Christiane was not immediately diagnosed. Doctors have long believed that skin disorders are the result of severe allergies. The baby was transferred to different mixtures, one product after another was excluded, but there were no improvements. And only two years later, experts suggested that we could be talking about ichthyosis.
The diagnosis has no effect on Christiana's talents.: She writes and draws with both hands, studies at art school, and enjoys beadwork. She has many friends who accept her for who she is. But, as the girl's mother says, "strength of character alone is not enough — the body needs support."
For children with ichthyosis, hospitalization and rehabilitation are not a whim, but a vital necessity. It is only in the hospital that you can undergo a comprehensive examination, adjust your care, and support your immune system and skin health.
Now the foundation needs to buy tickets for Christiana and 8 other "fish" children so that they can go to specialized clinics for treatment and rehabilitation and return home.
Your support will give them a chance to get to the doctors on time and get help, without which it is very difficult to live with ichthyosis.
Слава богу🙏 за всё
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Поможем все вместе 🙏
Общими усилиями всё получится!