Thanks to the medicine, Adelia will be able to hold a spoon and dress herself.

Thanks to the support of 837 users of the Tooba mobile app, ten-year-old Adeliya Kayumova has two months of intensive therapy ahead of her, which the family and doctors have high hopes for. Adelia's diagnosis, alas, does not suggest any miraculous cure. Metachromatic leukodystrophy is a complex, progressive autoimmune disease from which there is almost no cure. Almost - because doctors are confident that administering a drug of highly purified immunoglobulin will give the girl and her family another long reprieve. And with each new gram of expensive medicine, the myelin sheath of the nerve fibers will stop deteriorating so rapidly, and signals will again be able to reach the arms, legs and lungs. Adelia is a smart girl and understands everything that happens to her. Her brain is working fast and well, but the signals from it are getting slower and slower, and all the nerve endings in her body are covered with sulfatide, like wires are rusty. But the course of treatment, for which you have collected 197 thousand rubles, will help to stop these destructive changes for some time. Leukodystrophy is aggressive and sets in quickly, but the Kayumovs have high hopes for immunoglobulin G: now this is virtually the only drug with a proven effect, capable of halting the breakdown of myelin. The drug will remove the exhausting muscle tremor, and the daughter will be able to hold a spoon and dress herself again, see better, and eat not only soft grated food - this is an incomplete list of everything her parents hope for. And stock up on colored soap bubbles, blowing out which the daughter will soon have the strength. And not just for rehabilitation, but just for joy. Thank you so much to everyone who gave the Kayumovs hope!