Kamilla Chervukhanova from Ugra has a severe central nervous system disorder. It all started when the girl did not sit up when she was 7 months old, and then she could not stand on her feet. Then there was a severe epileptic seizure with respiratory failure. Camilla was put in the intensive care unit under the ventilator for the first time.
Trying to find a cure for epilepsy, last October doctors prescribed a new medicine for the girl. After 10 days of therapy, Kamilla dropped her head, stopped moving, started choking on food, and her seizures started recurring once a week. Since then, the girl has been on probe feeding, which makes her life unbearable.
The tube is unpleasant, unsafe, painful (the nose bleeds every now and then, the child vomits). If you replace this tube with a gastrostomy placed on her stomach, the life of the whole Chervukhanov family will be better and happier. Lunch will no longer be a test of the parents' nervous system. With a gastrostomy, they will be able to fight for Camille further.
Only the gastrostomy operation will have to be paid for. This type of treatment is not covered by state guarantees, because the ability to swallow food is lost due to a neurological pathology. That's what it says in the documents.
The law is not on Camille's side. Let us be on her side!
