Lida is 1 year and 3 months old, she was born with a rare and incurable genetic disease - epidermolysis bullosa. With this diagnosis, the skin does not perform its main function, which is protective. She literally exfoliates from any impact – touching, rubbing against diapers, and even from mom's hugs. Patients with EB are figuratively called "butterflies".
Little "butterfly" Lida lives with her parents and two sisters. My mother's pregnancy was calm, nothing foreshadowed trouble. But immediately after birth, it became clear that the baby had problems. Wounds appeared on her arms, legs, and mouth. That's how the family first heard the phrase "epidermolysis bullosa."
There is no cure as such for this disease, but Lida's skin can be protected with soft multi–layered bandages and care products such as antiseptics and creams. If Lida's skin is properly protected every day, the girl will be able to live a normal child's life, albeit with some restrictions.
We are raising funds for Lida's care products. Please support the little "butterfly", may there be less pain and more peaceful days in her life. Let her grow up, explore the world around her and enjoy life.
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