Abdulwose has epidermolysis bullosa and needs skin protection

Abdulvose has epidermolysis bullosa (EB), a rare genetic skin disease. With this diagnosis, proteins are not produced that "stitch" the skin layers together, and any awkward movement or even uncomfortable clothing can lead to injury. Because of this vulnerability, patients are figuratively referred to as "butterflies." In severe cases, the disease affects not only the skin, but also the mucous membranes. Due to constant injuries when swallowing, Abdulvose has a narrowing of the esophagus, he can only eat blended food. The disease also affected the mucous membranes of the eyes: the boy's vision is reduced to 20%, bright daylight causes him pain, sometimes he is forced to stay in a darkened room for several days. It's hard for him to be in crowded places, but at home he enjoys playing with his sister, watching cartoons and sitting on the phone. Abdulvose studies remotely and dreams of going to school like other children. EB is an incurable disease, but the life of a butterfly can be made easier. For this, special dressings and care products are needed daily. It is a multi-layered skin protection system that reduces pain, the risk of infections, complications, and new damage. The Butterfly Children Foundation opens a collection for anti-traumatic bandages and care products for Abdulvose. They will help protect his skin, reduce pain, and enable him to live not in coping mode, but in childhood mode.