Timur underwent overnight video EEG monitoring

Sodruzhestvo

Fundación Moscow

Immediately after birth, Timur fought for his life: on the third day, he suffered a hemorrhage, and his brain was seriously damaged. The boy developed differently: he rolled over, crawled, and sat up late. He only started walking independently at one and a half years old. He did not respond to his name, did not understand requests, and did not speak. At five years old, he began having epileptic seizures. A doctor managed to stop them, but the epileptic activity remained, and medication is constantly required. Now Timur is 8 years old and has a serious developmental delay. Every new word, every step in daily life comes with enormous effort. He has already undergone overnight video EEG monitoring—this is a way to hold on to what has been achieved with such difficulty, as the return of seizures threatens the loss of all acquired skills.

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Información de la colecta

Timur needs to undergo an important examination — nocturnal video-EEG monitoring

Timur is 8 years old. He was born full-term but with severe hypoxia — he didn’t breathe or cry at birth. Immediately after delivery, he was placed on a ventilator and admitted to intensive care. On the third day, he suffered a cerebral hemorrhage, resulting in serious brain damage. Timur’s development followed a different path: he rolled over, crawled, and sat up late. He didn’t take his first independent steps until he was a year and a half old. He wouldn’t respond to his name, couldn’t understand simple requests, and didn’t speak. His parents followed all medical recommendations and worked with him tirelessly, never giving up. At the age of five, he began having epileptic seizures. His doctor managed to bring them under control, but epileptic activity remained, and medication is now required on an ongoing basis. Today, Timur is a child with severe developmental delay. Every new word, every small daily task comes at great effort. Recently, he learned to express himself using two or three words. Last year, he stood on skis — a true victory for him. Despite everything, Timur is a kind, affectionate boy who loves music, fairy tales, and his grandmother’s pancakes. His mother is raising two sons, both of whom have disabilities. Rehabilitating two children is incredibly difficult, but their progress gives her strength. A relapse of seizures threatens to erase all the hard-won skills he has gained. Right now, Timur needs to undergo a nocturnal video-EEG monitoring. This is not just a routine check — it is the only way to preserve what has been achieved through such tremendous effort.

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