Nikita with SMA needs surgery to correct neuromuscular scoliosis

Nikita is 13 years old and has type II spinal muscular atrophy. Thanks to pathogenetic therapy, which he has been receiving since the age of 7, the progression of the disease has been halted. However, the consequences that it has already caused remain. Nikita works on them every day: he exercises, undergoes rehabilitation and strives to become stronger. He has now developed severe neuromuscular scoliosis. This is a rapid deformation of the spine that is already threatening the functioning of his lungs and internal organs. The weakness of his respiratory system has become critical. The only solution is urgent surgery to stop this threat. The cost of the procedure is prohibitive for the family. Support Nikita! Help preserve his right to movement — his right to breathe freely and live an active life.