For children with tyrosinemia, normal food is dangerous: this rare hereditary disease leads to severe liver damage if left untreated.
The story of Temirlan from the village of Kurdyukovskaya is an example of how important it is to make a timely diagnosis. Until the age of two, he grew up like any other child, but then his gait and well-being changed. There were misdiagnoses and operations on his legs until genetic analysis revealed tyrosinemia. He is better now: he walks on crutches, studies, and smiles more often, but he must follow the diet for the rest of his life.
Special foods are expensive. That is why the Life as a Miracle Foundation purchases and sends families low-protein food kits tailored to the age and needs of the child. For parents, this is not just food, but their children's health and confidence in the future.
We are launching a fundraiser for 318 732 rubles to help a few more families. Even a small donation is real support and a chance for a child to live without fear of food.
