Lera is 7 years old. She is a long-awaited and deeply beloved daughter. The diagnosis of tuberous sclerosis was only confirmed after her first birthday — before that, it was ruled out three times, but the seizures never stopped.
At 7 months, Lera began having infantile spasms and lost all her skills: she could no longer sit, crawl, or speak. But her family refused to give up. At one year old, daily rehabilitation began — and Lera achieved the impossible: she sat up at one, and by the age of two, she was walking and starting to speak.
Today, Lera is a sociable, emotional girl. She takes part in a theater studio, attends inclusive classes, loves to sing, dance, skate, and race go-karts with her dad. She affectionately calls her little brother "Lyonechka," adores her grandparents, and loves amusement park rides. But most of all — she has taught her family to never give up and to believe in miracles.
Lera now urgently needs an annual brain MRI (to monitor SEGA growth) and video-EEG monitoring during sleep, so that doctors can adjust her treatment in time and maintain her remission.
