The collection is complete: Vova Tomilov will receive the necessary medication

Thanks to the caring users of the Tooba platform, the collection for Vova Tomilov has been completed. The boy will be able to take the medication. Vova, who is 11 years old, lives with Duchenne-Becker muscular dystrophy. Until the age of seven, he was an ordinary child, except that he walked a little clumsily — his mother, Tatyana, called him a "bear cub." The disease manifested itself suddenly: one day, he simply looked at a staircase and couldn't climb it — the steps became like rocks. Then, the falls began. At first, the doctors wanted to cut the Achilles tendons, but an examination in Moscow revealed the truth: Duchenne-Becker muscular dystrophy, a less severe form of Duchenne myodystrophy. Tatyana still struggles to fully accept the diagnosis, but she is determined to support her son and is always by his side. Vova perseveres through hospitals and treatments, striving to walk and assist with household chores. To delay the need for a wheelchair, Vova needs the drug Deflan (deflazacort), which is the "gold standard" of treatment but is not registered in Russia. He needs 29 packs of the drug per year. Parents can't afford the expensive medication themselves, but with the support of everyone who responded to Vova's story, it became possible.