Ulyana with a rare genetic diagnosis needs skin care products

Deti-babochki

Fundación • Moscow

Ulyana finishes the first grade, learns to ignore curious glances, answer tactless questions and remain cheerful despite difficulties. The girl has Netherton's syndrome: her skin is characterized by dryness, peeling, cracks and redness. At birth, the diagnosis was not immediately made, and other diseases were also identified. The doctors warned: "Prepare yourself mentally, your child may not survive." But Ulyana coped. She likes to walk, ride a bike and a scooter, does dancing, and goes to the ice rink in winter. The diagnosis imposes restrictions: thermoregulation is impaired, active sports are contraindicated, and it is forbidden to have a pet due to allergies. Every morning — skin hydration: baths with special gels, lotions, emollient treatment several times a day. The expense is high, the cost is high, and a mother raising two children cannot afford such expenses. The Butterfly Children Foundation has been helping the family for several years. We are opening a collection for moisturizers, creams and shampoos for Ulyana. Your support will allow the girl to enjoy childhood without pain and discomfort!