Roma and six other patients with ichthyosis need tickets to the place of treatment and examinations

Deti-babochki

Fundación • Moscow

Roma has a rare genetic disease called ichthyosis. His skin is not just dry, but literally dehydrated: it is unable to retain moisture, so it constantly flakes, cracks and itches. "Roma's skin constantly needs to be moisturized and treated with various creams. He has the hardest time in winter, when the air is very dry due to the heating devices. And the summer heat causes serious discomfort to people with ichthyosis," says Roma's mother. In order to maintain skin protection and promptly monitor changes in her skin, Roma, like other foundation wards with rare genodermatoses (ichthyosis and epidermolysis bullosa), must regularly undergo hospitalization and rehabilitation in federal medical centers. We are opening a fundraiser for the purchase of tickets for Roma and six other wards of the foundation, thanks to these trips, the children will receive the necessary examinations and procedures in one place, which will consolidate the achieved treatment results. Help the foundation's wards get to the doctors on time!