Anton Nefedov, 4 years old, Solnechnogorsk
Diagnosis: Spinal muscular atrophy type II
We need two-story bars for children for learning to walk SN-70.04.00.
Antoshka is 4 now. All these years, he and his mother have been fighting an unequal battle with the fatal diagnosis of SMA type 2. Little Anton developed quite differently from other children, at one point he found it difficult to breathe and swallow.
In 2019, the boy was finally diagnosed with spinal muscular atrophy type 2 (SMA). This is a genetic disorder in which the nerve cells in the spinal cord responsible for movement coordination and muscle tone gradually die off, no signal goes to the muscles in his legs, back, and arms, and without tone, the muscles gradually atrophy.
The family immediately began therapy. Three times a year, Antoshka receives therapy with Spinraza, a drug that can slow down the progression of the disease and even give the boy some of his lost abilities back.
However, Anton needs not only the medication, but also unceasing exercises and simulators - so that he gets better, so that there is no "rollback" in development. To play together with his brother.
Anton likes to play with cars, collect legos, and he is a mischievous brat, just as a boy should be. Anton learned to stand for 20 seconds by himself, walk with his mother by the hand, he knows the alphabet, can count to 100, read with words, and even solve addition and subtraction problems within 10.
Right now, Anton needs our help. The boy needs special two-tier bars that are used for learning to walk. The bars are placed on two levels, which makes it possible to lean with his armpits and hands at the same time to maintain an upright position and direction of movement.
Dear Wizards, Antoshka needs our help. He will definitely run and play soccer, and catch butterflies with his net. How much courage in his eyes! And hope... Hope on you and me.
It's easy to help - the main thing is to start doing it!
