Farhod, 4, and Shukrana, 3, are brother and sister and have a rare genetic disease. The parents learned about the disease when the boy was 2 years old. Doctors for a long time could not determine a precise diagnosis, since thalassemia is rare and special equipment is needed for diagnosis.
The family went to hospitals in neighboring Uzbekistan and Kyrgyzstan, but only in Russia were they able to diagnose the gene mutation. When baby Shukrana was born, her parents already knew she had the same disease as her son.
To keep her hemoglobin levels normal, they had to take hemotransfusions every month. Shukrana and Farhod become quickly tired and pale because of their anemia, but they feel better after a blood transfusion and are indistinguishable from healthy children. Brother and sister love to play together and go for walks, and Farhod already shows interest in the alphabet. But as soon as their hemoglobin drops, the children get dizzy again and feel fatigued.
So far, the children do not have Russian citizenship to receive medical treatment for free. A bone marrow transplant surgery is ahead of them, thanks to which Farhod and Shukrana will be able to forget about regular trips to the hospital. And this will be possible when they receive Russian citizenship.
In the meantime, they need blood transfusions. Let's help them hold out a little longer until surgery! Participate in the collection to pay for Farhod and Shukrana's hemotransfusions so that the children can actively live, breathe and just be children!
Да поможет вам Всевышний Аллах! Амин☝🏻
Здоровья малышам 🤍
Пусть Всевышний исцелит лучшим образом 🤲