Is it acceptable to say this about a child born with type 1 SMA (spinal muscular atrophy), but Samia practically won the lottery. She received a shot of the world's most expensive drug, Zolgensma. The drug, worth more than $2 million, is injected just once, adds the missing "brick" to the DNA, and the deadly disease stops killing the child, and the muscles stop weakening and shutting down. Now Samia will live.
But whether she will move and walk is still a huge question. Right now her muscles don't know that they have to move, they have no strength in them, and the connections in the brain that make a person walk, run, grab, sit... have not been formed. And lessons with specialists are needed to help the child form these connections and get stronger.
But in the republic, where many doctors first heard about Samia's diagnosis from the lips of her parents, there is no support. The family has been waiting for a stroller and a home stroller for a year. Rehabilitation is not paid for at all. Previously children with this diagnosis never lived long enough to need all this.
But Samia was lucky. However, just surviving is not enough to be lucky. Samia can walk and run, and she's sure to dance. Help it happen!
Пусть Аллах исцелит наилучшим исцелением.
скорейшего выздоровления, малышка
Вы невероятные! Всего за сутки собрана бОльшая часть суммы! Спасибо! ❤️Осталось совсем немного, что я помочь Самии!
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