Six-year-old Damir has a rare disease, which occurs in one child of 400 thousand children - cloaca excrophy, short bowel syndrome.
It is a severe congenital defect, in which most of the abdominal organs (bladder and intestines) are exposed, the bladder is split into two parts.
The whole life of the boy and his family is a struggle against a terrible disease, which consists of going to hospitals, performing multiple surgeries, undergoing treatment courses, taking medicines, as well as restrictions on movement and eating regular food, because he drinks water with salt.
Damir was born six months old, with multiple vices. His intestines and bladder were thrown out, and his organs were joined together.
On his fifth day, after his birth, Damir was sent to the Moscow clinic for treatment.
"He was born with an immature intestine, during the attacks, he was screaming strongly, he had a convulsion," said, crying, grandmother Damir.
In January 2020, Damira was consulted by surgeons of the RDKB, and in February they performed an operation to reconstruct the ileostoma and install a browiac, a port through which parenteral nutrition will come.
This operation, which is already the nineteenth one, was a success. Damir spent only two days in the intensive care unit.
Now the boy needs to continue two weeks of treatment at the clinic OSP RDCB FGAOU VO RNIMU named after Pirogov, it is necessary for postoperative rehabilitation of Damir.
The cost of postoperative treatment of the boy in the clinic - 235 200 rubles.
Also in this cost includes training of grandmother, for six years on a par with Damir's mother engaged in the treatment of grandson, highly skilled professionals for the possibility of treatment in the system of home parenteral feeding, because after discharge Damir will have to connect to daily IVs.
Together with the Buliskeriya family we ask everyone who is not indifferent to help six-year-old Damir, who needs it so much.
We are sure that in the near future the boy will gain weight, will become stronger, will be able to develop normally, play and learn like all children.
So let's all together, by joining forces, help him in this.
After all, he has been waiting for it for so long - to live like everyone else, without pain and constant weakness.
