— I found out that Petya has anemia when I was pregnant. When the son was born, he was very pale. Since birth, we practically lived within the walls of the hospital — we regularly came to the Chelyabinsk Regional Clinic for blood transfusions, — recalls Kristina, Petya's mother.
The final diagnosis was made when Petya was one and a half years old — constitutional aplastic anemia. For several years, Petya's health was closely monitored by the doctors of the R. M. Gorbacheva Clinic, where on April 8, 2023, he underwent bone marrow transplantation from an unrelated donor from Germany. This was supposed to «reboot» the body and resume the production of a sufficient number of basic types of blood cells.
But there were complications. Petya's body could not protect itself on its own, a «graft versus host» reaction began. The medicine Jakavi can help to cope with complications. However, according to the attending physician, Petya's diagnosis is not included in the list according to which the medicine can be obtained at the expense of the federal budget. And you need to start therapy as soon as possible. That's why we are asking you for help.
Support Petya in treatment and help him overcome this difficult life period!
Друзья, сбор Пети завершён. Спасибо большое за поддержку ❤️
Здоровья 🙏🏻
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Скорейшего выздоровления.