Seva was born with a severe disease, epidermolysis bullosa, a rare genetic disease that disrupts the connection between the layers of the skin. Any awkward touch or little thing that a healthy person would not even notice (such as rubbing the seams of clothing) can cause them to exfoliate the skin and form blisters that turn into large, burn-like wounds.
Epidermolysis bullosa is currently incurable. The only thing that allows you to maintain a decent quality of life is daily dressings, which require high-tech medical devices designed specifically for burn patients. Only they do not injure the delicate skin of "butterflies".
Seva's mother tries her best to make her son live a normal life: when the boy was little, she even got a job as a nanny in a kindergarten so that Seva could socialize and communicate with other children. The Butterfly Children Foundation supports her efforts by providing Seva with dressings.
The collection will allow to purchase medicines for the next 3 months. Let's help Seva protect her skin!
Здоровья малышу🙏💗