The Khusainov sisters have been diagnosed! Doctors will be able to alleviate their condition!

LIVING

Fundación Moscow

Kamilya and Elvira Khusainov are two sisters struggling with a rare genetic disease, Shtrumpel's spastic paraplegia. In order to find out which gene caused the disease, doctors conducted a genetic analysis and found the answer to the question! Now you can help the sisters! It turned out that Camila and Elvira’s bodies do not excrete iron. Thanks to the genetic analysis, doctors were able to select the right treatment regimen and significantly alleviate the girls’ condition!

Informe

Información de la colecta

Sisters Camila and Elvira need a genetic test to select treatment

Kamilya and Elvira Khusainov are two sisters struggling with a rare genetic disease, Shtrumpel's spastic paraplegia. The first symptoms of the diseasebegan in preschool age. Since then, the life of the sisters has been full of trials: hospitals 2-3 times a year, medical sanatoriums, consultations of doctors. The parents tried their best to do something for their daughters, but the disease progressed. The girls' mother is forced to devote herself to caring for her daughters, while the father alone provides for the whole family. The progression of Camila and Elvira's illness worsens the situation, making every day a struggle for a normal life for the family. Now we have hope that we can find out which gene causes this disease. Accurate genetic diagnosis is a step towards understanding the disease and possible treatments. But this requires funds. We ask you to support this family by making a donation for this important diagnosis. Your contribution can be key in the fight against the disease and give Camila and Elvira a chance to live a more fulfilling life.

Donantes

850
Счастливый

Счастливый

18 655 ₽ • hace 2 años

Тритон Карелина

Тритон Карелина

40 ₽ • hace 2 años

Кольцехвостый кенгуру

Кольцехвостый кенгуру

65 ₽ • hace 2 años

Красный Волк

Красный Волк

100 ₽ • hace 2 años

Санфелипская хутияЭльмарКаринаРаиль
850 ayudan

Comentarios

11
Xanifa🌾
Xanifa🌾hace 2 años

🤲🏻

Anora
Anorahace 2 años

Пусть Всевышний Аллах поможет ❤️

Alya Gadjieva
Alya Gadjievahace 2 años

Пусть Аллаh поможет. 🤲💕

Курбан
Курбанhace 2 años

🤲🏻

Descarga la app de Tooba y haz buenas acciones en tres toques desde tu smartphone. Unimos fundaciones benéficas verificadas y garantizamos transparencia en cada etapa: desde tu donación hasta el informe final de la campaña.

¡Únete a la comunidad de corazones solidarios y cambiemos el mundo para mejor juntos!

Código QR